“If ever there is tomorrow when we're not together there is something you must always remember, you are braver than you believe, stronger than you seem, and smarter than you think. But the most important thing is, even if we're apart I'll always be with you.”

~Winnie the Pooh

5.19.2017

jia update

let me just tell you all this, as if you didn't already know, but our carson is a real life superhero.  i should've known from the beginning that it was just in his blood.  i do no know any other ten year old who could handle all the things that have been thrown his way with such ease.  i'm pretty sure his superhero power is his amazing personality and ability to get over it an move on.  this kid has been through it and yet even with tears in his eyes and fear in his gut he can still smile and make me feel better about all the crap we have to make him do.  not once do i ever hear him utter a single complaint or a "it's not fair" when all i want to do is scream it as loud as i can.  

our latest hurdle, juvenile idiopathic arthritis, has been a doozy.  he went from being completely independent and even released from pt at school to literally crawling his way around the house (without so much as a single complaint, seriously, it's a real super power).  thankfully we were about to get on the schedule to get steroid injections into his knees.  i'm not sure carson would use the word thankful, but after seeing the immediate relief that's exactly what we were, thankful, grateful, amazed, relieved, all those feelings wrapped up into one is how we felt.  watching your kid be in pain and not be able to make it go away really sucks.  

so for now, we will stay on our once a week shot of an injection of meds that will suppress his immune system, and couple that will a bunch of meds to combat the side effects of that drug, along with his other daily medicine he was already on.  while we wait to see which ones will work for us i have looked into several different books on autoimmune diseases and how diet change can affect/help with the inflammation.  carson's celiacs blood work can back negative so as far as they are concerned it's not food related but it can't hurt to try a diet change if it would mean getting off some of the medicines he's on. never a dull moment around here, that's for sure.  

getting checked in and gowned up...see that little tear that escaped.  that about broke my heart.
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game face on
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being silly and trying to take our mind off the scary stuff
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all done and on the way home.  all in all he did great.  definitely not a fan of being sedated but once it all wore off he was just fine.  fingers and toes crossed and prayers said that we don't have to do this very often...maybe a diet change will help, maybe a supplement, or maybe the medicine will work and take over.  all i know is my carson is back to his old self running and playing.  which to be honest, i was worried we wouldn't see him do any of these things again.  so for now we will enjoy the benefits of modern medicine.   here he is running and playing for the first time since his knee pain started back in february.  and no, you're not seeing an illusion.  that is actually all 3 of my kids playing together.  i had to take a picture for proof.
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cannonball!
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